Swansea meeting, March 2018

We had another great meeting in Swansea for our second South Wales Asbestos Support Group meet-up of 2018, this time at the Railmens Club & Institute.

We were met by a large group of warm and friendly faces, both regular members and others attending for the first time.

This month, we were also joined by David Lloyd, a team member for Carolyn Harris, Member of Parliament for Swansea East.

David was with us to show his support, as well as give some great and helpful advice on how we can best move forward with our petition for reinstating compensation for pleural plaques.

We again had a chance to have a good chat with each other and discuss how we have all got on since the last meeting, and managed to fit in some food and drink amongst the chatter.

Always going forward

Following on from the success of the first two SWASG meetings of the year, we plan on maintaining our fantastic momentum with the petitition to reinstate compensation for pleural plaques, with perhaps more of a focus on local areas in the coming months.

If you would like to get involved with spreading the word about this petition and indeed the awareness of all asbestos-related illnesses, please join us at one of our upcoming meetings to find out how you can help.

The next meeting of the year will be held on Thursday, April 26. This will be a return to the Taffs Well Rugby Club – Maes Gwyn, Taffs Well, CF15 7JD.

For further information regarding meetings and upcoming events, please come back here in the not-too-distant future for updates and information about SWASG.

If you would like to get in touch, please don’t hesitate to give SWASG group coordinator Eddie Gilbertson a ring or an email. His number is 07572 090 500 and you can send him an email at swasg.wales@gmail.com

First meeting of SWASG in 2018, and announcing future dates

Our first meeting of the South Wales Asbestos Support Group in 2018 was held on February 22 at the wonderful Taffs Well Rugby Club.

We were joined by some regular friendly faces, even a few travelling over from Swansea, as well as a new member attending for the first time after hearing about us from a friend.

Plans were discussed about upcoming meetings throughout the year and we were all overjoyed at the news that our Pleural Plaques Petition was nearing 2,000 signatures!

If you haven’t already signed our online petition asking the House of Commons to reinstate compensation for those of us diagnosed with the condition in Wales and England, please do so as we truly feel that the system as it is is unjust and unfair. You can sign and show your support by clicking here: Reinstate Compensation for Pleural Plaques in England and Wales

Upcoming meetings

Following the successful meeting we had in February, our next meeting of SWASG will be on Wednesday, March 28. This will be held at the Railmens Club & Institute, 42 Wind Street, Swansea, SA1 1EE.

The third meeting of the year will be held on Thursday, April 26. This will be a return to the Taffs Well Rugby Club – Maes Gwyn, Taffs Well, CF15 7JD.

For further meetings and upcoming events, please come back here in the not-too-distant future for updates and information about SWASG.

If you would like to get in touch, please don’t hesitate to give SWASG group coordinator Eddie Gilbertson a ring or an email. His number is 07572 090 500 and you can send him an email at swasg.wales@gmail.com

May meeting and future plans

The May meeting at our usual venue, Taffs Well Rugby Club, went well. Despite a few people being on holiday, we welcomed some of our regulars and a couple of new faces, which was good to see.


The coffee and tea flowed and the cake was devoured while we planned a return to Taffs Well Rugby Club in June. Put the date in your dairy! Thursday, June 29, between 12pm and 3pm.

June will also hopefully see the launch of our petition to highlight the unfair treatment of Welsh and English workers diagnosed with pleural plaques. While compensation is still paid in Scotland and Ireland for this condition, nothing is done for those exposed in Wales and England.

We’re also planning a meeting in Swansea in July, which we hope to tell you more about soon.

April SWASG meeting and canal boat outing

For our latest meeting, the group met up on April 27th and it is fair to say that we all had a good time.


We had a chance to talk about what was going on in our lives and how our various asbestos-related conditions were affecting us, as well as discuss our plans to bring forward a petition aiming at getting compensation reinstated for those diagnosed and suffering with pleural plaques.
If you would like to hear some information regarding our plans for this petition, don’t hesitate to give Eddie a call on 07572 090 500.

The beginning of May also gave us the opportunity to join Gerry Slade and members of her support group on a wonderful canal boat trip through Gloucester.


We joined Gerry and her group on a lovely sunny day, although it det get a little chilly!


We can’t thank Gerry enough for extending an invitation to us, and we are more than looking forward to meeting up with her and the group in the near future.


As always, if you would like to get in touch with Eddie our group co-ordinator, you can call him on 07572 090 500, or send an email to swasg.wales@gmail.com. Eddie can keep you updated on any upcoming meetings and events, and answer any queries you might have about asbestos and how it can affect your health.

The launch of AASC’s ‘Future Generations Project’

This month Eddie was honoured to be invited by Asbestos Awareness and Support Cymre (AASC) to the launch of its Future Generations Project.

The event was held at the Senedd at the beginning of Global Asbestos Awareness Week (April 1-7) and was sponsored by Mick Antoniw (AM).

Eddie said: “The event was excellent and a real eye-opener about the great work that AASC does for people exposed to asbestos and especially those diagnosed by mesothelioma, as well as their family and friends.

“The AASC’s Future Generations Project is so important and will save lives. The project aims to raise awareness amongst children and young people about asbestos, the risks involved, past mistakes, associated illnesses, how to care for and support people with asbestos related diseases.”

The event included talks by the Cabinet Secretary for Health, Wellbeing and Sport, Vaughan Gething (AM), and the Technical Director of Santia Asbestos Management, John Evans. John spoke about asbestos, its uses, the horrific legacy and the continued presence of asbestos in the UK’s factories, offices, schools and homes.

The audience also heard about the incredible work of Mesothelioma UK – from Liz Darlison, Nurse Consultant and Director of Services for the charity – and the new role for Sarah Morgan. Sarah was recently appointed as a Mesothelioma Specialist Nurse for Wales and told the audience about the care needs of those diagnosed with Mesothelioma.

There was an update from Dr Jason Lester, Consultant Clinical Oncologist, on the James Lind Alliance’s top 10 mesothelioma research priorities, which was published in 2015 and is based on the ideas of mesothelioma patients, their doctors, caregivers and bereaved caregivers.

One of the most emotive talks was from AASC’s Lorna Johns. Lorna introduced the Future Generations Project and its key goals. She told the audience about ‘Jo’s Story’, to raise awareness of some of the issues facing carers and to highlight that carers should not feel alone. Jo had to look after her father after he was diagnosed with mesothelioma. Jo’s moving account of the impact of the disease on her father – and her family – can be read here.

Eddie says: “There are so many challenges in the battle against the legacy of asbestos but an event like this goes to show that there are a lot of good and smart people trying to help.”